Monday, August 31, 2015
a great phone call
As I think I mentioned, we have begun a new drug called PD1. Our insurance denied payment because it is currently only approved for melanoma. The testing for Osteosarcoma began this week but it will be months before that data is available. We don't have that long to wait so we decided to pay it on our own. Our doctor submitted a request to the drug company asking if they could give me some kind of better price since I was paying myself and insurance wasn't helping. The drug company turned down our request. We were just planning on paying $8000 every other week and somehow finding the money. It would have added up. I think that treatment would have consisted of at least 6 injections at $8000 each. It might have even been more.
So, today, I came home and was just sitting down for lunch when a phone call came in asking for me by name. The lady on the phone said she was calling from Brystyl Meyers. She said "We have decided as a company to provide all of your drug at no cost to you. It will be shipped directly to your doctor"
Well that started me crying. She asked if I was okay I told I was just so grateful. " i have been through so much. What you are doing means so much to me" She just said "We re glad we can help you" Every time I turn round I see another miracle from God
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Miracles never cease. How wonderful!
ReplyDeleteit seems like I see miracles almost every time I turn around. God is so good to me. I am grateful
DeleteThis has tears running down my face. I am so happy for you that you don't have to worry about financing this new drug on top of everything else. No one deserves it more! Love you, dear brother!
ReplyDeleteDear Leslie,
DeleteYou are so sweet. Thank you for caring about me enough to cry. You are so good. This last blessing really came out of the blue and I am so thankful. I hope that God continues to bless you as well sweet Leslie. I care about you a great deal too.
You have been through SO much! I'm glad to see the blessings pouring in! One more thing that makes it seem like this is the right drug to take! A dentist told me today that God is good! I think she is right- God is good and a good father who loves you!!! Kelly and I love you too and pray for you and Jolynne!
ReplyDeleteDear Eileen,
DeleteGod is good. I agree. and I know that He is real and that He loves me. I am so aware of that these days. I have no doubt of that any more. Maybe I am past faith. It is knowledge now. I am grateful for that knowledge. It sustains me. So does your friendship my dearest Eileen
Hooray!!! You needed that!!! Lots of thank yous going Heavenward for sure!! That's wonderful!
ReplyDeleteDear Roma. You are the best of friends. I love you and Paul. I am so glad that you are a part of my life.
DeleteThe above comment was from Roma, not Nate!
ReplyDeleteSuch wonderful news!
ReplyDeleteThank you. IT was wonderful news. Really straight from heaven in my opinion.
DeleteThat's SUCH a blessing and so incredible!! It started making me cry, too. I'm so so happy for you.
ReplyDeleteDear Candace. You are a perfect example to me of that scripture that describe true followers of Christ. They mourn with those that mourn. You have such a tender good heart. So full of love. I hope that you know that I love you too.
DeleteSo happy for this most recent miracle. You are often in my thoughts and prayers. -But please know if you ever need anything from me, I would love to be of help.
ReplyDeleteFrom time to time I get an update through a fellow dentist or your blog. Last night I was getting caught up on your blog and read your entry about your book. What an amazing expression of eternal truth. If you are still looking for help with illustrating the story, I would love to offer my meager artistic skills. Even if it is just in getting your basic desires down and expressed to a professional artist... or all the way to completion. -no pressure if you already have things lined up with someone else.
Thanks for sharing through your blog. It is a blessing my life to learn from the way you face your trials so courageously. I pray that you may be nearing the summit, and that your trail down be smooth, scenic, and long.
Hope you're having a good day! Again, no pressure with the illustrations, I just wanted to offer.
Your friend always,
Joe
Dear Joe, You are such a good person and such a good friend to me. I have been blessed in so many ways. One of my greatest blessing has been having friends like you. Thank you.
DeleteI know God sends those little tender mercies when we need them! I dreamt about my dad the other day, after a few really hard days of missing my dad. He was standing in a crowd of people with tons of dark hair that was sticking up all over the place, I ran to him and hugged him, he was skinny and younger than me, how I needed that hug! Dad's hair was always sticking up when it was thinning but I didn't remember if it was like that when he had lots of it. I asked my mom and she said his hair was always sticking up, we had a good cry! I know God's aware of what you and your family's needs are right now! Please know what a great example you are to me and have been my whole life, well before cancer was even an issue, but watching you go through this has only strengthened that for me. I love you and your family!
ReplyDeleteDear Lisa. I loved that dream. It was beautiful. Thank you for sharing.
DeleteIt has been far too long since we were updated, mostly just plan to check in when we have appointments but did not realize you have been have so many troubles thes last months. We are very sorry these are such trying times for one we feel great friendship for even though our relationship has only come through your professional services to our family. Nonetheless we ache with you as you have ached in our behalf in the past. Our best wishes and prayers will be with you. Doug and Anita Belliston
ReplyDelete